My name is Andy Dungey and I live in the UK with my wife Clare. We're fairly normal people... I work with computers, Clare is a teacher. We live in a nice house and regular attend our local church. We have lots of lovely family and friends.... Such an idyllic picture!
Here is our baby at 12 weeks....
Isn't he lovely! Life was going totally to plan...until the 20 week scan. There were some unusual issues with him and we were referred to Addenbrookes in Cambridge. The scan revealed that our little boy will have a skeletal displaysia and although they can't be definite until he turns up, it's most likely Achondroplasia.
These are big words for a small problem...literally! Achondroplasia is dwarfism to you and I. They were fairly sure it's non-lethal but there was a cyst in his lung (called a CCAM) to contend with and maybe a club-foot! We would have to wait until the next scan to see how he's doing.
Well that scan has happened this week and, praise God, the little chap is doing really well! The CCAM seems to have disappeared and his chest is growing as it should so they are still saying the condition is non-lethal.
So, why create a blog? We're not after sympathy...it may be less than a month since the first sign that something was not quite right, but we're already coming to terms with the new course of our life. But, naturally when you find out something like this, you turn to the internet to get all the information you can. There's loads of US-based sites about dwarfism (see the top of our links section for an excellent blog in the States), but fewer in the UK.
So this is our purpose... to provide information about dwarfism and how to raise a "little person" in the UK.
We don't know what lies ahead, but we're sure that with God's help we can get through it. And as we find out useful information, we'll post it here so that when the next person gets the diagnosis that will change their life, we can hopefully put to rest some of their fears.
Happy reading!
Friday, 29 June 2007
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1 comment:
Fantastic blog, I hadn't noticed littledungey.blogspot.com before during my searches!
Carry on the fantastic work!
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